How I understand autism
as a mom with an autistic son,
as a wife in a neurodiverse marriage,
& as a physician caring for patients in the ER
I learned about autism in medical school and I cared for autistic patients every day as a doctor in a busy urban ER, but when my son was diagnosed with ASD and my husband - 16 years after we fell in love - discovered his own neurodiversity I realized that autism was nothing like what I thought it was. Ultimately, it was the autistic community and the two amazing autists I love, that taught me what it means to be autistic and changed how I care for and support the autistic humans, especially during times of overwhelm, pain and stress.
Thank you to my friend at Salt For My Squid for use of their incredible artwork
The Theory of Monotropism:
“Autism is not a set of deficits, but rather a different, more focused strategy for using attention”
- Dr. Wenn Lawson
The non-autistic (polytropic) mind explores the world with a broad, diffuse focus.
The autistic (monotropic) mind explores the world with narrow & tightly focused attention.
How We Pay Attention Changes Everything
Details within the beam of monotropic focus are noticed with incredible clarity and depth; however, details outside the area of focus may be missed entirely. This changes the way the autistic mind learns, develops and understands emotion. It leads to deep knowledge within areas of interest but can make it challenging to ignore unwanted or intrusive thoughts, sensations, or feelings.
Smells smell stronger
Sounds sound louder
Itches feel itchier
Knowledge is deeper
Feelings can be all consuming
or seemingly not at all
The Beauty of the Monotropic Mind
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"Every single thing has its own unique beauty. People with autism get to cherish this beauty, as if it's a kind of blessing given to us.”
― Naoki Higashida,
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"I believe that autistic people have a unique way of looking at the world, which can be incredibly valuable."
John Elder Robinson
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"If you've met one individual with autism, you've met one individual with autism."
Stephen Shore, EdD
The human response to fear & overwhelm: Meltdowns, Shutdowns, Withdrawal, Escape
Challenging Autistic Undesired
Innate human behaviors
Meltdown, shutdown and withdraw happens when the mind becomes "hooked" on a negative stimulus—whether a sensory experience (a harsh sound, uncomfortable texture), a thought (a painful memory, a worrisome prediction), or an intense emotion—the amygdala, the brain's fear center, is immediately activated …